“Machines will not replace physicians, but physicians using AI will soon replace those not using it.”
-Antionio Di Ieva (The Lancet, Journal of Molecular Endocrinology)
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24 Reasons You Should Own Your Own Health Data
- You paid for it.
- It’s your body.
- It is worth more than any other type of data.
- It’s being widely sold, stolen, and hacked. And you don’t know it.
- It’s full of mistakes that keep getting copied and pasted, and that you can’t edit.
- You are/will be generating more of it, but it’s homeless.
- Your medical privacy is precious.
- The only way it can be made secure is to be decentralized.
- It is legally owned by doctors and hospitals.
- Hospitals won’t or can’t share your data (“information blocking”).
- Your doctor (>65 percent) won’t give you a copy of your office notes.
- You are far more apt to share your data than your doctor is.
- You’d like to share it for medical research, but you can’t get it.
- You have seen many providers in your life; no health system/insurer has all your data.
- Essentially no one (in the United States) has all their medical data from birth throughout their life.
- Your electronic health record was designed to maximize billing, not to help your health.
- You are more engaged and have better outcomes when you have your data.
- Doctors who have given full access to their patients’ data make this their routine.
- It requires comprehensive, continuous, seamless updating.
- Access to or “control” of your data is not adequate.
- ~10 percent of medical scans are unnecessarily duplicated due to inaccessibility.
- You can handle the truth.
- You need to own your data; it should be a civil right.
- It could save your life.
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